23 Comments
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Chris Buck's avatar

The even bigger tragedy is that the website is so badly maintained that parts of it have effectively drifted into disinformation. The page on metformin hasn't been updated for nearly a year, and it's therefore missing two overwhelmingly convincing randomized controlled trials from Bramante et al. The past year's trial results keep showing that safe/cheap metformin is effective for treating acute Covid and for preventing long Covid - whereas pretty much every recent trial of expensive/risky Paxlovid keeps indicating Paxlovid doesn't really work. The tragedy is that nobody - including President Covidbrain - is aware that metformin is now the better choice because the NIH can't be bothered to update a web page for ten months. If all the site is going to do is toe some outdated party line then I say good riddance.

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Nate Bear's avatar

The answer is not to get rid of it but make it work better. There is a clear need for a resource like it

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Chris Buck's avatar

I totally agree about the need for up-to-date Covid information - I'm just lamenting the fact that NIH doesn't appear to be capable of resisting political pressure to botch the effort.

On the bright side, anonymous citizens have created this amazing masterpiece of interactive meta-analysis:

https://c19early.org/mf

https://c19early.org/pl

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Laura T RN BSN's avatar

Let’s create a site

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Mardi Crane-Godreau, PhD's avatar

Hi Laura,

I'm a scientist who has recovered from Long COVID. I survived and have largely recovered based on the work of well respected scientists. I include my personal experience and the science in my posts.

I invite you to review my site that is dedicated to providing high quality free information to patients and providers.

https://longcovidjourney2wellness.substack.com

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Laura T RN BSN's avatar

Am so sorry have not read it yet but wish you well

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Laura T RN BSN's avatar

Thank you so much will share this with others!!

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Mardi Crane-Godreau, PhD's avatar

Yes. See my comments plus a post that similarly takes NIH and CDC to task for their apparent blindness.

https://longcovidjourney2wellness.substack.com/p/tackling-mitochondrial-dysfunction

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Laura T RN BSN's avatar

Can we create a website?

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Dru's Muse's avatar

It can be logged in the internet archive

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Laura T RN BSN's avatar

We can claim more died under Biden because we were already infected but if Trump had won it likely would be same or worse outcome. I will say under Trump counterfeit PPE was distributed to hospitals leading to excess death to nurses and doctors. And hospitals paid for this and cost thousands of dollars. Trump initiated disinformation campaigns Biden shut them down. Right now under Biden Mandy CDC director still has vaccines in warehouses so we are back to unvaccinated again lack of boosters to new variant. I would give both sides an F.

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the suck of sorrow's avatar

I just sent this message to Monica Bertagnolli.

The subject was "Why shut down a treatment site during a surge?"

Dear Ms. Bertagnolli:

Is it really the goal of an official of the National Institute of Health to draw a clear distinction between themself and a eugenicist?

Whether the answer is yes or no, you are clearly no eugenicist.

David Lamy

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Sherri Wilson's avatar

They caused the issue now they want to ignore it!!!! Yet before the vaccine they never studied natural antibodies or immunity!

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Dru's Muse's avatar

I sure each page is being logged in the internet archive. Sheesh

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Dru's Muse's avatar

*I sure HOPE

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M (is) Living with Long Covid's avatar

Thank you for this! Just wrote an email

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Mardi Crane-Godreau, PhD's avatar

While I agree that the NIH COVID-19 site for special populations should be kept open and active, I would also note that as of recent posts by NIH and the CDC, largely ignore research and data that addresses the role of virally induced mitochondrial dysfunction in disease treatment.

I recently posted about failures of NIH and the CDC to address the root causes of C-19 and included links to open access, peer reviewed papers that consumers and providers can use to support special populations and Long COVID care. https://longcovidjourney2wellness.substack.com/p/tackling-mitochondrial-dysfunction

My posts are open to all readers.

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Vanessa's avatar

And we know even less about how to treat Long Covid, even amongst those that are not immunocompromised, than we do treating COVID.

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Achior Jacobs's avatar

Done.

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Camilla Cracchiolo's avatar

Is it OK if I post this article in its entirety on my Facebook page? Thanks.

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Nate Bear's avatar

Of course

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