Tomorrow the US government agency responsible for biomedical and public health research, The National Institutes of Health, will shut down its Covid-19 ‘special populations’ website.
This site hosts a huge amount of information about how to treat covid and long covid in the immunocompromised and in people with HIV, cancer and similar immune supressing conditions - so-called ‘special populations.’
The site is going totally offline.
It’s hard to believe.
It’s a shameful dereliction of duty by the NIH which, behind Harvard, is the second largest publisher of biomedical research papers in the world. Doctors and clinicians all over the world use the NIH site for advice and treatment ideas.
And it’s going offline during a massive summer surge of covid infections in the US, a surge that is now topping 1.3 million infections per day. (One of whom was Anthony Fauci, who was infected for the third time last week). A surge killing 750 people a week in the US. Many of whom will be precisely the type of people this website is intended to help clinicians treat.
It’s a scandal.
The message it sends to vulnerable people could hardly be clearer - when it comes to covid, there’s nothing else we can do for you. Sorry. That’s it. We’re done.
It’s so terrifying.
It also sends a terrible signal to the medical community about where we are with covid
and will be materially damaging in efforts to treat vulnerable people, both in the acute stage of the disease and those with long covid.
The move to shut the page down is premised on an entirely false assumption: that we already know everything we’ll ever know about how to manage covid so there’s no point keeping a live web resource because they’ll never be anything to update it with ever again.
This is simply not true. While we know a lot about treating covid four years in, we absolutely do not know everything, not by a long stretch. As evidenced by the hundreds still dying every week in summer 2024. And as for long covid, we know very little about how to treat it. For a start, there is no agreed treatment plan. Absolutely none. But apparently we also know so much about this disease we can start shutting down online resources dedicated to it.
Please imagine for a second if a Trump administration rather than a Biden-Harris administration was doing this.
There would be an outcry.
But this move has so far been greeted by media silence.
It is left to a few disability activists and the covid aware to shout into the social media void.
Not that this is a surprise. This is how it has been for the last two years at least, guided by the business as usual, vax-and-forget strategy. More people have died of covid under the Biden-Harris administration than died under Trump. Despite having vaccines since 2021. You’d never know it by mainstream media coverage.
Some people have written to the director of the NIH, Monica Bertagnolli, and asked them to keep the advice live and up-to-date. If you want to do this her email address is:
monica.bertagnolli@nih.gov
And the Long Covid Action project has archived the pages of the site here.
Maybe if enough people write to her and enough noise is made the decision will be reversed. Worth a try.
Overall it’s just another grim episode in the handling of the pandemic by the current US administration, an administration who, we should never forget, won power in large part due to the outrage at Trump’s handling of the first nine months of covid.
Solidarity to everyone still trying to protect themselves and their communities from covid against all the odds.
At least we can keep fighting for each other.
(Artwork as always by the fabulous @ronniefurbear on IG)
The even bigger tragedy is that the website is so badly maintained that parts of it have effectively drifted into disinformation. The page on metformin hasn't been updated for nearly a year, and it's therefore missing two overwhelmingly convincing randomized controlled trials from Bramante et al. The past year's trial results keep showing that safe/cheap metformin is effective for treating acute Covid and for preventing long Covid - whereas pretty much every recent trial of expensive/risky Paxlovid keeps indicating Paxlovid doesn't really work. The tragedy is that nobody - including President Covidbrain - is aware that metformin is now the better choice because the NIH can't be bothered to update a web page for ten months. If all the site is going to do is toe some outdated party line then I say good riddance.
We can claim more died under Biden because we were already infected but if Trump had won it likely would be same or worse outcome. I will say under Trump counterfeit PPE was distributed to hospitals leading to excess death to nurses and doctors. And hospitals paid for this and cost thousands of dollars. Trump initiated disinformation campaigns Biden shut them down. Right now under Biden Mandy CDC director still has vaccines in warehouses so we are back to unvaccinated again lack of boosters to new variant. I would give both sides an F.