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Colleen Steckel: ME-ICC Info's avatar

As a front line advocate for myalgic encephalomyelitis, I can fully relate to being shushed for speaking up. Status quo is killing people in our community and yet too many "advocates" & even nonprofit "ME" orgs are telling those of us angry about the reality to stop rocking the boat.

This silencing has resulted in society's lack of awareness about this devastating disease.

It is important to understand why people benefit from status quo. Once the motivations are made clear there is no mystery. Power/money/ seat at the table are clear motivators in maintaining status quo.

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Darinder Bhangoo's avatar

It’s a type of gaslighting, manipulation and victim blaming. I’m 💯 with you

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